I am not usually one to ask others to send me energy....especially people I don't actually even really know in person....but this seems to be an exceptional circumstance.
I've been really sick the past couple of weeks and even ended up in the ER due to high doses of prednisone. I get these "attacks" of my heart pounding and racing, tingling in the back of my head and hands, feeling like I am going to pass out and am not getting enough oxygen, mouth and throat being way too dry and feeling like I can't swallow, and a feeling of unreality (I though tI was going crazy) and also mood swings and just generally feeling weak....the thing is, they can't take me off this medicine. I need it for my eyes.
However, they are trying another medicine which starts today so I can be able to wean off this. This other medicine is my only other option. But this medicine has a risk of lowering my white blood cell count, so I have to get a blood test for it once a week to make sure it isn't.
I just need to get off this horrid prednisone....I can't stand being on it. I don't feel like myself. I have to wear a portable heart monitor to record episodes....it's just hurting me. I couldn't stand to have to be on it permanently. I don't even feel like I can live my life in this way. So, I am just asking for anything you are willing to do to help for healing or to help insure that this other medicine is going to work without that dangerous side effect.
I really appreciate anything. ~hugs to all~ I need a hug.
A Request, Please
The joy of long term steroids. I hate Prednisalone[ same thing - different brand name] I get extreme effects too. Good luck with the new drugs,hope they are better. Seratonin syndrome is a relatively new condition, but it seems that may be what you are experiencing,it happens with certain meds/crossover of meds. and it can be extremely serious. My neighbour has been taken off prednisone because she now has a damaged heart valve,shame things get that bad before action gets taken.These are dangerous drugs,even in controlled circumstances - we need safer treatments.End of rant.Grrrrr.
You have my best wishes and energy,as much as I can send. I 'll light some candles etc. as well.Geri.
You have my best wishes and energy,as much as I can send. I 'll light some candles etc. as well.Geri.
Thank you guys, I love you all! I send you all hugs back.
Feel better Deirdre! I don't want anyone to be sick...of course that could never happen, but you know what I mean.
Eretik, I never heard of that condition....that's just scary. And a damaged heart valve? My goodness...I already have a murmur, and that's why they have me on this monitor right no. A friend of mine who had to take a lot of prednisone got avascular necrosis (deteriorating function in her legs) from it. God I hate this drug. I have prednisolone too, but it is in the form of an eye drop so it doesn't bother me. It's the pill that does. And it tastes nasty too....even if you don't put it on your tongue it dissolves instantly. The liquid form I had when I was little was even worse. Yuck.
A friend of my mom's sad that when she was on prednisone she felt like she was dsconnected from herself like an OBE (but not in a good way) and I have felt that way too...it's like...I would touch my face and not feel it....like I felt like I wasn't really existing....it's so strange and no fun at all b/c you have no control...it's like you are at the mercy of the medicine as it invades your hormones and twists them all around. blah.
Ok that's enough of MY rant lol. I need to get some sleep b/c the symptoms increase when I have a lack of it.
Feel better Deirdre! I don't want anyone to be sick...of course that could never happen, but you know what I mean.
Eretik, I never heard of that condition....that's just scary. And a damaged heart valve? My goodness...I already have a murmur, and that's why they have me on this monitor right no. A friend of mine who had to take a lot of prednisone got avascular necrosis (deteriorating function in her legs) from it. God I hate this drug. I have prednisolone too, but it is in the form of an eye drop so it doesn't bother me. It's the pill that does. And it tastes nasty too....even if you don't put it on your tongue it dissolves instantly. The liquid form I had when I was little was even worse. Yuck.
A friend of my mom's sad that when she was on prednisone she felt like she was dsconnected from herself like an OBE (but not in a good way) and I have felt that way too...it's like...I would touch my face and not feel it....like I felt like I wasn't really existing....it's so strange and no fun at all b/c you have no control...it's like you are at the mercy of the medicine as it invades your hormones and twists them all around. blah.
Ok that's enough of MY rant lol. I need to get some sleep b/c the symptoms increase when I have a lack of it.
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morak
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KaidaPyralis
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